The moment I did my #alsicebucketchallenge #icebucketchallenge#strikeoutals donate www.alsa.org, I was reminded of a friend who died of muscle failure disease, which I remember was cancer or sort, when I know him, he was already at that stage & I didn't ask much about it, as I don't know where to start, had a few dinners with him, even dinner at home, his best friend will always carry him in and out of car, wheeled around. Attended his funeral like 2 years ago. Had seen someone died from it & didn't even realised what disease it was, think I was quite ignorant. Pete Frates is a famous sportsman, my late friend was a famous golfer. No clear known causes for ALS, can I make an assumption of overusing muscle? Hence the fund was for the research of the cure, of course to know the causes would be great help.
Years back, cancer is not a major issue, today, cancer is like getting flu or fever! It's really crazy. I won't be surprised if ALS will be wide spread too.
My buddy who died of cancer has muscle related prob too.. Having being there with someone so close seeing how they lost one by one of their organ failing is totally devastating as you can't do much but just watching them die. Though I hate big pharma but yes, we still want to have the hope that somehow somewhere the root cause of all these diseases be known and we can e prepared and prevent.
I saw how my friend couldn't speak, not able to control her tears/ water/ mucus from coming off her through 4 holes simultaneously. From eyes, nose, mouth & teach hole. That time I still made some joke out of it with her, as she was sorting out her belongings getting ready to face her death.
On the final day of her life on April 2013, nothing else move beside weakening heart, slow panting breathing & the very deep of her eyeball.. Eyes not closing, one eye is already gone/blocked/swollen.. The other stare right up to the ceiling of the hospital bed, tears flow out as I read out last messages from her friends from her phone and a birthday card meant for the next few days
Worse way to lose a friend, having to say goodbye to her, last seen her from body bag in mortuary before sealing up in coffin. Not a scene for anyone, definitely not something imaginable or even expectable.
Those are the diseases I hate and we don't know exactly the causes or cures!
Anyway, here's a video of how this challenge started..
Years back, cancer is not a major issue, today, cancer is like getting flu or fever! It's really crazy. I won't be surprised if ALS will be wide spread too.
My buddy who died of cancer has muscle related prob too.. Having being there with someone so close seeing how they lost one by one of their organ failing is totally devastating as you can't do much but just watching them die. Though I hate big pharma but yes, we still want to have the hope that somehow somewhere the root cause of all these diseases be known and we can e prepared and prevent.
I saw how my friend couldn't speak, not able to control her tears/ water/ mucus from coming off her through 4 holes simultaneously. From eyes, nose, mouth & teach hole. That time I still made some joke out of it with her, as she was sorting out her belongings getting ready to face her death.
On the final day of her life on April 2013, nothing else move beside weakening heart, slow panting breathing & the very deep of her eyeball.. Eyes not closing, one eye is already gone/blocked/swollen.. The other stare right up to the ceiling of the hospital bed, tears flow out as I read out last messages from her friends from her phone and a birthday card meant for the next few days
Worse way to lose a friend, having to say goodbye to her, last seen her from body bag in mortuary before sealing up in coffin. Not a scene for anyone, definitely not something imaginable or even expectable.
Those are the diseases I hate and we don't know exactly the causes or cures!
Anyway, here's a video of how this challenge started..
